Friday, October 19, 2012

Update

Thanks for the prayers. Gemma is great!
So, I was up all night before the MRI and luckily Gemma woke up on her own at 4am so I was able to nurse her before the cut off time. Then I was worried about getting her the pedialyte before 6:30 am, because she won't take a bottle. I kept trying to get Gemma to take the bottle and she flat out refused to take it! She would make the worst face when I would put the nipple in her mouth, if I wasn't worried about her getting enough to eat before the MRI it would have been funny. So I decided to try something else and put it in a cup and she drank it up! A lot of it went down her chin, but she drank enough to keep her hydrated. That was the first time she drank out of a cup!
    We got to the hospital right on time 8:30am. The nurses took her vitals and then we were told that she would not be getting general anesthesia, they would give her an oral form mixed in a cherry syrup that they give in a syringe. They had to squirt it in her cheeks, and I think she thought it was candy bc she had no problem swallowing that up. :). I can't tell you how relieved we were that they did not have to give her an iv. We were just not ready for that again. The only reaction she had to the drug, was that it made her very cranky right before she went to sleep. That was hard to see bc it really made her upset. She was screaming and crying and shaking for a few minutes, and then went to sleep. I got to stay with her during the MRI.
  When she woke up we were told she might be very cranky and feel woozy ect. But she woke up, ate and was in the best mood she had been in in a long time! She was cooing and smiling at everyone. It was such a relief to see her like that and not all upset like the last time.

 So now we get to the nurosurgeon. He walk in and says, there is nothing wrong with your child! Omg thanks be to God! There is a slight malformation of her spine, the base is blunt instead of elongated. If it were going to be a concern it would have already presented itself in the way her legs are shaped and in the strength of them. He checked her all over said nothing was out of place, we have nothing to worry about, and this will not cause any problems later in life.  The only thing we have to do next is see the urologist when she is a year old, besides continuing updates with her surgeon. That is to check to make sure we won't have any problems with potty training. That is another worry for another time. For now we are just so thankfull that her spine is not tetherd or any other issues.

Wednesday, October 17, 2012

Prayers for Gemma

Hey everyone, just asking for some prayers for tomorrow for Gemma. We have an MRI scheduled for tomorrow morning. It's a routine MRI for kids born with imperforate anus, usually around their 6 month. Gemma has the so called "easiest" form of IA, so there is only a 30% chance that something else could be wrong. She has already had all of her major organs checked and all came back normal. This is the last test. They are checking for a tetherd spinal cord. So far we haven't noticed any symptoms, and in fact Gemma is doing amazing, so we are pretty confident that nothing is wrong.  
    This is not as major as her surgery of course, but she does have to be sedated. That is scary. I have to stop nursing her at 4:30 am so I am sooo hoping that she wakes up on her own so I don't have to wake her up.  Imagine wanting your baby to wake you up at 4:30am!! Lol but I'm scared how she is going to react not being able to nurse. It not only feeds her, but it comforts her too. She's not going to understand what's going on. We can give her clear liquids until 6:30am. But she won't take a bottle since I've been home! So this will be interesting.
   I'm scared of how  she will react to all the strangers and watching them put her under sedation. She won't know what's happening or why. It's just bringing back all the concerns and memories of her surgery. It was horrible. She was in so much pain, it was horrible. I can't go through that again.

So please pray that there are no adverse reactions to the sedation and the MRI comes back normal.